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To Know Autism

An Odyssey of Companions and Prosperity.

By Staci Nappi, Mom Publisher/Editor, Riverhead Macaroni Kid November 7, 2024

To Know Autism: An Odyssey of Companions and Prosperity.


As a parent of an autistic son, I know that hidden behind every person’s face is a different world full of richness, depth and potential. Autism Spectrum Disorder (ASD) is not a diagnosis; it’s a different mode of existence, misdiagnosed but amazingly beautiful.

The autism minefield can be complex. Typically, a diagnosis is a team process wherein pediatricians, psychologists and neurologists look for signs and developmental milestones. This integrative approach reminds us that autism isn’t a function of a single set of criteria. Instead, it’s the full range of experiences, each one following her own trajectory.

DSM-5 describes autism in three sets of needs:

Level 1 is for moderate support

Level 2 is for moderate support

Level 3 is for extremely significant support. 

These spectrum levels show that the spectrum is not a designation but a recognition of autistic differences. Individual differences in strengths and needs show that autism is not a one-size-fits-all disease.

Autism is more than 70 years old, but the term was only popularized in the 1940s. We’ve all felt alone and misunderstood in our years before being diagnosed. This fact is essential for caring and belonging in our communities.

The diagnostics, however accurate, are not without their intricacies. Autism isn’t characterized by clear blood tests or scans. Rather, experts draw on observation, developmental tests, and standardized tests of social and communication abilities. The parents often see the symptoms – delays in growth or uncoordinated behavior – and that is the first question and evaluation.

Intervention is timely, and the evidence suggests that early autism diagnoses and interventions are extremely helpful – sometimes as early as three years of age. BOT/speech therapy may be part of a treatment plan, depending on the individual. It is a highly tailored program that values development and autonomy while giving people on the spectrum a sense of agency and identity.

There is a bright spot despite all the obstacles. A lot of autistic people lead rich lives and bring value to their communities. Neurodiversity is an effective tool to enlist and honor the voices of autistic people. Such a paradigm shift encourages a culture of being differently inclined and valued.

We are the storytellers and content creators who have the highest obligation to share resilient, victory, and empathetic stories. Telling the stories of those with spectrum disorders opens our minds to what they are experiencing and also removes stigma from autism. Every narrative is a part of the human fabric that reminds us that any problem has the promise of astonishing accomplishment and fulfillment.

Awareness and understanding are crucial. Once we are willing to take up the autism narrative, we can all join in the effort to build a world where everyone is good, and everyone is beautiful. We can in our journey try to build bridges of empathy, where no one will ever be left behind or misunderstood. By doing so, we enrich the lives of those we serve and our society as a whole.